Born without a nose and nicknamed “ Voldemort ,” this little girl has physical characteristics that set her apart from the ordinary. Her remarkable story challenges us to embrace the beauty and diversity that exists within humanity, redefining our understanding of what it means to be truly extraordinary
She was born with a rare condition
Tessa was born with a rare condition called complete congenital arhinia , meaning she was born without a nose. This condition, which affects a small number of people worldwide, presented Tessa with unique challenges from the very beginning of her life. However, she refused to let her condition define her and embraced life with unparalleled enthusiasm.
Arhinia occurs when the nose fails to develop during pregnancy, resulting in the absence of this facial feature. In Tessa’s case, her condition also means she lacks the olfactory system, the part of the brain responsible for recognizing odors. Despite the challenges she has faced, her parents see her as a beautiful and extraordinary little girl.
When Tessa’s parents, Grainne and Nathan Evans, discovered their daughter’s facial deformity during an ultrasound scan , they were overcome with emotion. Five months into the pregnancy, they were told their daughter would be born without a nose. Despite their initial shock, they decided to give Tessa the best care and support they could.
Tessa’s journey has been marked by several medical procedures and surgeries
Shortly after her birth, she was transferred to the Intensive Care Unit, where she underwent a tracheotomy to help her breathe. At just eleven months old, Tessa had to undergo cataract surgery, further increasing the challenges she faced at such a young age.
Two years later, Tessa underwent cosmetic surgery to implant prosthetics under her skin, laying the groundwork for a future artificial nose implant. The decision to proceed with the surgery was not without trepidation for her parents, but they saw it as an opportunity to gradually improve Tessa’s appearance, making her face more “normal.” The procedure involved the use of bone and skin grafts, which is typically recommended during adolescence, when the face has finished growing.
Despite these physical difficulties, Tessa’s enthusiasm remains unwavering.
essa has learned to adapt to a life without a nose, breathing through her mouth and deprived of the sense of smell that most people take for granted. Tessa’s infectious joy and zest for life are testament to her unwavering determination to live life to the fullest.
Her story has captured the attention of many around the world, inspiring many who are facing personal challenges. Her strength and resilience remind us that true beauty lies not in physical appearance, but in the indomitable spirit that lies within each of us. Tessa’s journey serves as a beacon of hope, reminding us that we can overcome any obstacle with determination, courage, and the support of family and friends.
In a world where it’s easy to be consumed by negativity, stories like Tessa’s shine a light on the triumph of the human spirit. This steadfast little girl’s journey is far from over, and her story continues to inspire countless people around the world.